About Pediatric Heart Transplant Support

Our Mission: Help families by providing pediatric heart transplant support

Caralynn before needing pediatric heart transplant support

caralynn at the beach

Established to help widen the availibility of pediatric heart transplant support, Heart of Hope- The Caralynn Titter Foundation provides experienced resources and assistance during a families’ heart transplant journey.  During their own pediatric heart transplant experience with infant daughter Caralynn, Josh and Mandy Titter were overwhelmed with loving, continuous support.  Residing only 25 miles from the transplant center in A.I. DuPont Hospital for Children, Josh and Mandy were able to rely on help from nearby friends, family, church members, and others to assist with everything and anything.   Now Josh, Mandy, and the entire Heart of Hope family strive to help carry the load so that parents may focus on what really matters: their amazing children.

Some of the pediatric heart transplant support provided by Heart of Hope may include, but is not limited to, the following:

  • Assist family with registering with COTA (Children’s Organ Transplant Association)
  • Receive hospital bag filled with Nemours food cards, Visa gift cards, take-out menus, journal, toiletries, etc.
  • Receive support books
  • Support from families who’ve “been there”
  • Set up Care Calendar so family and friends may provide meals
  • Bracelets of Hope
  • Sibling support
  • Weekly hospital visitation with family and child
  • Financial support as necessary
  • Pastoral Care
  • Donations to COTA sponsored events and benefits
  • Work alongside child life specialist
  • Work alongside psychologist
  • 24-hour access to Heart of Hope family Facebook group
  • Monthly support group dinner meetings
  • Massage therapy gift certificates with Nemours Masseuse
  • Quarters for laundry services at Ronald McDonald House
  • House cleaning
  • And more…..

Heart of Hope- The Caralynn Titter foundation hopes to support families through individualized care and personal support. From our family to yours, please help us give hope to hurting hearts.